Alzheimer’s is a deadly disease to manage.
President Ronald Reagan had it.
Ronald Reagan’s son recounts that he used to hug his father every morning.
One day some one asked Reagan,pointing out his son.
He replied ,
Who is it?
The man who hugs me!’
Such is the severity of the disease.
A woman is managing her husband with Alzheimer.
Let’s look into it.
Dedication, that’s the word for it.
US Family Life is not what we see in Hollywood movies.
May these family values endure.
“My dad was diagnosed with Alzheimer’s about three years ago. After an extended stay at the hospital and stints in two different rest homes, my mom brought him home to care for him herself. She did this despite warnings that it would be too much for her to handle—even with regular assistance—because the conditions in the homes were too depressing to bear. There is an unseen routine in the lives of most home caregivers that makes Michael Haneke’s Amour look like Sesame Street. I wanted to find out what the day-to-day life of someone tasked with keeping another adult alive is like, so I talked to my mom about it.
VICE: How does your average day begin?
BB: Usually I wake up before LD and get dressed, and I try to get the coffee made and the cereal stuff out. But if he wakes up first, I just get him cleaned and dressed and then do the other stuff.
What time does he get up?
He’s gotten so he goes to bed between 8 and 9 PM and sometimes sleeps until noon. One day I was so tired and exhausted that I didn’t hear him and he got up and went into the den at seven in the morning. He ended up somehow falling, and I found him on the floor tangled up in the chair. But usually I wake up before him and get dressed real quick, because if I don’t he watches me do every single thing, and it drives me crazy.
Why does he watch you?
Because he doesn’t have anything else to do. He just stares. And he wants to see what food I’m making.
I know he usually wets the bed at night, even through the disposable underwear. Do you change the sheets after you wake him up?
I take the sheets and the pajamas and the shirt and socks and just wrap them up in that plastic liner that keeps the mattress pad dry. Sometimes if he wakes up before I do he’ll have already taken his underpants off. I get him to the bathroom and have him sit on the toilet so I can get his wet clothes off and wipe him off with Handi Wipes.
You have him sit on the toilet to get dressed and undressed?
Yeah, because he might go. And if he’s not bad, I can use those Handi Wipes and wipe him off and put powder on his back and in his underwear so that it will be dry. But, like, today he was soaked and had taken his own stuff off and didn’t want to get in the shower. He doesn’t like me to bother his pants, and when I mess with them, that’s when he grabs my wrists. I figured out that I can reach behind him and underneath and pull the pants down that way. He’s still grabbing, but once I get them down, he’ll sit on the toilet. It’s tricky. Once he’s got a hold of my wrist I’ll threaten him. I say, “You’re going to have this hand in your face if you don’t let go of my hand.” [laughs] He knows I’m not going to do it, but… I get really angry because I’m helping him. I try to explain to him, “I’m trying to help you, and you are hurting me.” And he’s strong. Sometimes my wrists are red afterward.
He doesn’t realize you’re helping him.
He wants to do things himself. He always has.
Then when you finish with the clothes…
Once I get him in the shower, I pour shampoo on his head. Baby shampoo, so he won’t tear up. I used to give him soap and he’d use it, but now he doesn’t, so I put on these gloves and put the soap on my hands and just reach in the shower. Of course I get soaking wet—my jeans and everything, but I soap him up and down and wash his head. He doesn’t like that at all.
- Cafe caters dances, chats for Alzheimer’s patients (q13fox.com)